My life with CIDP

 In January this year my insurance company decided to change my most vital medications to generics. It was an epic failure. First off I was taken off Gamunex C and put onto Priovgen. Same dose 60g a day for two days every three weeks. I have been on Gamunex since 2010 and other than shifting the dosage to find a balance that worked for me I haven't had any problems. My labs always come back perfect. We started out with 50g a day for five days every six weeks then over the next few years as I stabilized it was changed to 55g a day for four days every three weeks. Then it was changed to 55g a day for three days every three weeks and then last year to 60g a day for two days. This January 2020 I was changed to privogen from gamunex. Same dose as the previous year of 60g a day for two days every three weeks. I didn't notice the difference right away but over time I noticed that I wasn't getting any energy boost like I did with Gamunex. I started getting horrible leg pain in the

       I know it's been quite a few years since I blogged but I'm going to try to be better about it. I have gone through loss & depression in the last six years but I have also had some triumphs & happiness.       I'll give a brief 2015 rundown. I turned 40 in January. In April I went to the BBW beach bash with a friend of mine. I met some amazing people and had a lot of fun. I got out of my comfort zone and did a photoshoot with a photographer while I was there and actually had some great pics taken. I felt the closest to "normal" as I had in ten years at that point. I met a guy that I hit it off really well with and we remain friends now, five years later. I met my ex-bf there as well. It lasted almost a year and ended badly.           2016     Most of 2016 was good. I broke up with the loser bf in September of that year then on November 19, 2016 I lost my dad suddenly to a massive heart attack. That was hard and I'll make a longer entry later on th