My life with CIDP

"Thanksgiving is all over & mom put up the tree, looks like a merry Christmas, for everyone...including me!" Ok so any of you that know the "Bad little boy" Christmas song know that I changed the words some, but hey, it fits. (I love Ray Stevens version) This has been an interesting year. Let me begin with last Christmas. I was in a lot of pain because of an exacerbation (no, I didn't finally learn to spell that, I found it in a dictionary!) of my CIDP. I took an extra Lyrica for a few days so that my brother wouldn't know just how much pain I was in while we played video games for 3 days straight. I wasn't getting weak but my endurance level dropped significantly. For my birthday in January my mom, my "twin" & I went to universal studios to go to the Harry Potter section. It was a long walk from the car to where I could get a scooter & we had to stop & rest 3 or 4 times. I had to use my cane (which did not make me happy) beca...

Its been a while since I posted anything. First I broke my foot, then I got sick, then internet problems. If you have read some of my other posts you know that I had a relapse of my CIDP symptoms begining in January and cresting (as I like to call it) in  February then I started to feel better. Well I was feeling really good April 25 and decided to open the gate when we were leaving one afternoon so that mom didn't have to do it. (I hadn't been driving or walking in the yard because I didn't feel strong enough) So I made it 2 steps & stepped on something and my foot rolled and I went down like a sack of taters. I was able to get up off the ground on my own, which I wouldn't have been able to do a few weeks earlier, and my foot hurt but not real bad so I cleaned the scrape on my knee & we left to go to town. When we got to walmart my foot was hurting more than when I had fallen but still, I could walk on it so, I did. When I got home it was screaming at me. I t...