tag:blogger.com,1999:blog-3735039359206747030.post7905790114243679224..comments2013-11-11T13:27:56.165-08:00Comments on My life with CIDP: Highs & lowsCherylhttp://www.blogger.com/profile/09147651906168686013noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-3735039359206747030.post-39597288664840936942013-11-11T13:27:56.165-08:002013-11-11T13:27:56.165-08:00Hi Kim,
I'm sorry to hear you also have CIDP, ...Hi Kim,<br />I'm sorry to hear you also have CIDP, it sucks, but it could be so much worse. I'm also sorry to hear that you seem to kind of have a jerk of a husband. (luckily I didn't marry my jerk!) Maybe have him read what I've been through & he'll see that it's not just in your head & you aren't begging for attention. At one point some of the crummy doctors told me the same thing. I told them if I wanted attention I'd have gotten knocked up! That a wheelchair completely dependent on others for all my needs was not my idea of fun. <br /><br />My pain was getting better till cooler weather hit. Now Its back in full force but I started physical therapy last week & am approved for 8 visits. I'm hoping that when 2014 hits I'll be approved for more & can finally get relief. On the bright side, Florida isn't real cold for long & that's only in January. <br /><br />Anyway, try to keep sane & listen to your body, it knows way more than anyone else does.<br />And as always, believe in the magic of life.<br />CherylCherylhttps://www.blogger.com/profile/09147651906168686013noreply@blogger.comtag:blogger.com,1999:blog-3735039359206747030.post-68016384695848091562013-11-07T21:51:16.461-08:002013-11-07T21:51:16.461-08:00I am sorry to hear about all your troubles I am gl...I am sorry to hear about all your troubles I am glad it is getting a little better. I lived in Texas all my life and had been to so many dr's that they were making me feel like i was a drug seeker and would never really do a complete exam as they should.<br />I moved to Virginia in Dec and of course had to get a primary phys to get my medicine transferred and refilled here. He said " oh I can't fill those one or this one. Long story short I referred to many Dr's which now I realize is was the best ever. The 1st dr he referred me to was the one that did an actual physical exam and range of motion & had me have some cat scans and MRI's. The next time I went to him he did the nerve conduction & EMG test, Thats when he gave me the bad news of my dx and had me a direct admit into the hosp. I spent 1 week there and had my 1st IVIG treatment and since I was discharged I have had 2 sessions . I am just waiting for my neurologist and the other dr from from UVA to decide how often and what routine to be on. The Dr that dx me wants me to do phys therapy but it's hard when I have to ask my husband for money and sometimes he wouldn't even give it to me for dr appt until I told him they new he was doing this. He thinks I am faking for attention because our washer and dryer are downstairs in the basement and he was even in the room when the dr said that I was not allowed to go up and down them stairs with a laundry basket nut my husband heres what he wants to . I just need my own money and checking account since he canceled me off his too. I actually had a job for 1 day and 1/2 then they let me go saying I couldn't carry out my job description which I understand being in medical field, They don't someone shaking while I draw their blood or give injections. But I am better now that I am on a ton of <br />meds. I actually replied about the pain in your hips because I have the same issue along with pain from upper shoulder to shoulder. So I think I will try what you are doing in moderation and see if that helps. It is just hard being so far away from my mom and friends. I have his family and they are good but it is nothing like having momma around. I jst need a job and my own money and make new friends also. I was happy to find your blog. Thanks for listening<br />Kim LafonAnonymoushttps://www.blogger.com/profile/10116866654850102850noreply@blogger.com